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Pioneering Unique Cures for Kids (PUCK)

St. Paul, Minnesota

Cause Description:
PUCK was established to give hope where there wasn't any before. We recognize rare diseases and aim to cross each one off the incurable list, one at a time. We recognize we cannot cure all diseases at once. PUCK will focus its attention and resources on three diseases at a time. As one gets crossed off the incurable list we will add another. Currently we are focusing on Epidermolysis Bullosa (EB), Fanconi Anemia (FA) and Adrenoleukodystrophy (ALD). Mission of PUCK: 1. To build awareness for rare diseases 2. To create a place of support for rare diseases 3. To raise money for research on rare diseases

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