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International FOP Association - IFOPA

North Kansas City, Missouri

Cause Description:
The International Fibrodysplasia Ossificans Progressiva Association, or IFOPA, supports education, clinical care, research, and communication. Fibrodysplasia (Myositis) Ossificans Progressiva is a disease in which normal bone forms in muscles, tendons, ligaments, and other connective tissues, forming an extra skeleton that immobilizes the body. The IFOPA was founded in 1988 to end the social isolation imposed by this rare, debilitating disease.Together we make a difference.

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