You Shop. Your Charity Gets Money. For Free. Please login or choose a cause to support.

Help Joshua Frase Foundation

Every purchase from great stores helps Joshua Frase Foundation.
An iGive member has listed this organization:

Joshua Frase Foundation

Ponte Vedra Beach, Florida

Cause Description:
The Joshua Frase Foundation is dedicated to supporting ongoing medical research for myotubular myopathy and other related congenital myopathies. Ongoing research is needed to discover causes of and cures for this deadly disorder. Rather than concentrating in only one area of study, a team of leading researchers has been assembled who will try to combine their respective different areas of expertise into a multi-faceted approach aimed at understanding the pathophysiology of myotubular myopathy so that effective therapies can be formulated. Leading our research, Louis Kunkel, PhD, is world-renowned in the field of neuromuscular disease research. Dr. Kunkel discovered the gene for muscular dystrophy and is overseeing human trials of limb Girdle Muscular Dystrophy. We are dedicated to supporting families lacking the resources for medical equipment needs. Parents grapple with physical, financial, and emotional hardship as they fight for the lives of their children. These children often cannot perform the simplest functions by themselves, like swallowing or breathing. They must be supervised 24 hours a day, often requiring expensive medical equipment. In addition, the Foundation will promote continual networking to seek out opportunities to support advanced ongoing research and keep people informed. As parents of a child who suffers from myotubular myopathy (MTM), we know first hand about the trials and tribulations that come with this deadly disorder. Our son, Joshua, has shown us the true meaning of courage and has proven to be a fighter. Our mission is simple: We are funding research for a cure, raising awareness of MTM and other related congenital myopathies, and reaching out to other families who deal with the day to day care needed to enhance the lives of these children. The Joshua Frase Foundation, through the efforts of friends, family, and a dedicated staff has given us real hope for a cure and has improved the quality of life for children living with this disorder. Our goal of myotubular myopathy being added to the ”endangered disease” list is in our sights but it can’t happen without people like you. In time, a cure will be found. We invite you to join us on our journey, which we believe will result in the “Joshuas” of this world walking up to you, taking you by the hands and saying ‘thank you’. JFF funds genetic research for gene and cell therapy as well as cell regeneration at Our mission is simple: We are funding research for a cure, raising awareness of MTM and other related congenital myopathies, and reaching out to other families who deal with the day to day care needed to enhance the lives of these children.

To support Joshua Frase Foundation with a free iGive account, click here!

Fundraising for Joshua Frase Foundation has never been easier. Up to 26% of each purchase is donated to them.

iGive.com is the easy way to support Joshua Frase Foundation.  Your everyday purchases Joshua Frase Foundation mean serious donations!

Folks just like you have helped list over 35,000 causes and charities at iGive.com, including Joshua Frase Foundation.

Previous: Animal Welfare League of Arlington | Next: La Leche League of Habersham County

Cause Name Location Check Date Check # Amount
Morton IL Boy Scout Troop 178 Morton, IL 61550 Mar 31, 2021 818551 $27.28
Mary's Kitty Korner, Inc. Pleasant Valley, CT 06063-0418 Feb 28, 2020 814617 $28.60
Greater Chicago Ferret Association Lyons, IL 60534 Nov 30, 2018 808909 $102.87
Propionic Acidemia Foundation Deerfield, IL 60015 Sep 06, 2018 807275 $28.34
100+ Abandoned Dogs of Everglades Florida Wilton Manors, FL 33334 Oct 31, 2018 808248 $26.80
A Better Chance in Ridgefield, Inc. Ridgefield, CT 06877 Dec 31, 2018 809118 $32.55
PomRescue.com Roebuck, SC 29376 May 31, 2023 824225 $26.30
Tender Loving Care Animal Shelter Homer Glen, IL 60491 Dec 31, 2018 809398 $32.14
Rescuer's Relief, Inc. Fallon, NV 89406 Sep 30, 2021 819866 $41.00
Community Partners of Tarrant County, Inc. Fort Worth, TX 76103 Dec 18, 2019 814396 $40.87
Cause Name Address Location Created Date
Operation Underground Railroad PO Box 57338 Salt Lake City, UT 84157 Apr 07, 2023
4 Paws Sake PA PO Box 102 Milton, PA 17847 Nov 21, 2022
Jasper Church of the Nazarene 1028 Betsy Pack Drive Jasper, TN 37347 Apr 03, 2023
Ocean Grove Camp Meeting Association 54 Pitman Avenue Ocean Grove, NJ 08742 Feb 10, 2023
Your Love Unleashed Dog Rescue 17130 Van Buren Blvd Riverside, CA 92504 Jan 23, 2023
Wikimedia 1 Montgomery Street San Francisco, CA 94104 Sep 05, 2022
Feline Rescue and Rehome P. O. Box 250567 Little Rock, AR 72225 Feb 12, 2023
The Sparrow Rescue, Inc 2105 Vista Oeste NW Albuquerque, NM 87120 Jan 18, 2023
Focus on Community 1240 Washington Ave. RACINE, WI 53403 Mar 02, 2023
Beryl Heights Elementary School PTA 920 Beryl Street Redondo Beach, CA 90277 Sep 02, 2022