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Living With Trisomy 13

Huntington Beach, California

Cause Description:
Embracing Life~ One Moment at a Time with Trisomy 13 Life and the Treasured Memory Support Groups Patau Syndrome (Trisomy 13) Mission Statement: Offering Support Resources and bringing together families who have a child with an extra Chromosome 13. Whether they are: on the prenatal journey... have a child living presently... those who’ve had a stillbirth, a child who lived briefly or many days, and those further along on their journey. This amazing community of families, through their own grief and pain, reach out to help others on this very unique journey with Trisomy 13. All these families have lived and are living with a Trisomy 13 diagnosis and the reality of how it changes lives. With Courage, Grace, and Hope they continue on. Experiencing the transformation of grief into “Thanksgiving JOY.”

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