Help The Foundation for Children with Atypical HUS

The Foundation for Children with Atypical HUS

Cape Elizabeth, Maine

Cause Description:
The Foundation for Children with Atypical HUS is a 501c3 organization designed to serve three major purposes. The primary purpose of the organization is raising monies in order to fund medical research. The medical research that will be funded will be those studies that are attempting to find better treatments or a cure for this rare disease that affects mostly children. The Foundation does not intend to do any medical research itself. Instead, it will seek out those organizations that are searching are qualified to do research on this type of disease. Included in this definition of “better treatments” is the ability to better diagnose the condition. Therefore, when financially possible, the Foundation will attempt to provide genetic testing at a reduced rate or even free of charge to those uninsured. A secondary purpose of the organization will be on the development of information and support materials for parents of children who are suffering from this disease. The information includes a website, printed materials about the disease, internet forums and well as occasional press release about the disease. Finally, we will increase public awareness by educating our medical community, especially Pediatric Nephrologists worldwide, which will ultimately help obtain public funding for the disease.

Type: Human/ Social Services
Listed on iGive since: December 2011
iGive members supporting: 25

Website: http://www.atypicalhus.org/

Raised through iGive: $356.48 across 9 checks, January 2012 to May 2016.

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