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Interstitial Cystitis Association (ICA)

McLean, Virginia

Cause Description:
The Interstitial Cystitis Association (ICA) is the only non-profit association solely dedicated to improving the quality of healthcare and lives of people living with interstitial cystitis (IC), also known as painful bladder syndrome or bladder pain syndrome. The ICA was founded in 1984 by an IC patient and doctor out of her concern that others not have difficulty obtaining a diagnosis and treatment. Today, the ICA continues to provide advocacy, research funding, and education to help ensure early diagnosis and optimal care with dignity for the more than 4 million people affected by IC. Unique to the ICA is their work with Congress and government agencies, advocating on behalf of IC patients and their families. The ICA Pilot Research Grant Program, funded largely by patient contributions, works to identify potential causes and, ultimately, a cure. The ICA website (www.ichelp.org) offers the latest information about IC. Sign up for the ICA e-Newswire and receive free updates on research, treatments, self-help strategies, and more.

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