Interstitial Cystitis Association (ICA)
The Interstitial Cystitis Association (ICA) is the only non-profit
association solely dedicated to improving the quality of
healthcare and lives of people living with interstitial cystitis (IC),
also known as painful bladder syndrome or bladder pain
syndrome. The ICA was founded in 1984 by an IC patient and
doctor out of her concern that others not have difficulty obtaining
a diagnosis and treatment. Today, the ICA continues to provide
advocacy, research funding, and education to help ensure early
diagnosis and optimal care with dignity for the more than 4 million
people affected by IC. Unique to the ICA is their work with
Congress and government agencies, advocating on behalf of IC
patients and their families. The ICA Pilot Research Grant
Program, funded largely by patient contributions, works to identify
potential causes and, ultimately, a cure. The ICA website
(www.ichelp.org) offers the latest information about IC. Sign up
for the ICA e-Newswire and receive free updates on research,
treatments, self-help strategies, and more.
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