Cause Description:
We are a loving support group for families around the world
who have been blessed with a child with Cockayne syndrome.
We help children receive an earlier diagnosis so they can get
support. We also important research on many levels but
mainly translational research for treatments and a cure for our
children suffering from this tapid aging syndrome. Share &
Care Cockayne Syndrome Network started connecting families
and researchers around the globe in 1981 and continues to be
the worlds best resource network for families and medical
professionals.
Mission: Helping Cjildren with Cockayne Syndrome and their
Families Improve their Quality of Life through Support,
Education,and Research.
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