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Association for the Bladder Exstrophy Community

West Allis, Wisconsin

Cause Description:
The Association for the Bladder Exstrophy Community, established in June 1991 (formerly known as the Association for Bladder Exstrophy Children), is an international support group network comprising individuals with bladder exstrophy, local parent- exstrophy support groups, and health care providers who work with patients and families living with bladder exstrophy. We collect resources, talent, and information to assist patients and families living with bladder exstrophy to help them master the medical and psychosocial issues relating to exstrophy. Bladder exstrophy is an initially devastating, congenital birth defect that results from abnormal development of the cloacal membrane and occurs in 1 in 30,000 births. This anomaly is most common in boys and has obvious physical defects - a misshapen penis (or vagina), a shortened urethra, an exposed incompetent bladder, and widened ureters. With current medical procedures, the patient with exstrophy has a good chance for urinary continence with surgical reconstruction or through intermittent catheterization. However, this positive medical outcome occurs through great pain and sacrifice on the part of the children and their families. The child with exstrophy undergoes multiple surgical procedures, associated lengthy hospitalizations, and many repeated outpatient visits and treatments, all of which impact the child's psychosocial, cognitive, and behavioral development. The ABC accomplishes its support function primarily through ABC Update, its quarterly newsletter. ABC Update provides a forum in which issues, questions, and concerns about exstrophy can be discussed. We are also involved in conducting support group meetings across the country to allow for patient and family interaction, guest speakers, and other educational and supportive functions. We endeavor to provide informational resources and emotional support to patients and families living with bladder exstrophy in order to empower them to cope with the psychosocial and medical issues of this problem.

Type: Human/ Social Services
Listed on iGive since: August 2001
iGive members supporting: 103

Website: www.bladderexstrophy.com

Raised through iGive: $1,208.57 across 32 checks, May 2002 to February 2017.

Payments sent to Association for the Bladder Exstrophy Community
Period endingAmount
Feb 28, 2017 $26.28
Nov 30, 2015 $43.41
Oct 31, 2015 $31.43
Jul 31, 2015 $28.45
Apr 30, 2015 $50.80
Dec 31, 2014 $26.79
Aug 31, 2014 $40.29
May 31, 2014 $51.46
Apr 30, 2014 $45.92
Feb 28, 2014 $44.99
Jan 31, 2014 $27.03
Nov 30, 2013 $46.40
Aug 31, 2013 $43.96
Jul 31, 2013 $32.53
May 31, 2013 $27.55
Jun 30, 2010 $28.34
Jan 31, 2009 $32.36
Jun 30, 2008 $42.50
Feb 29, 2008 $64.45
Jul 31, 2007 $30.70
Apr 30, 2007 $29.53
Jan 31, 2007 $34.27
Dec 31, 2006 $67.44
Oct 31, 2006 $30.97
Jun 30, 2006 $26.26
Mar 31, 2006 $27.00
Nov 30, 2005 $25.70
Jul 31, 2005 $90.14
Feb 29, 2004 $26.69
Oct 31, 2003 $27.36
Apr 30, 2003 $34.87
May 31, 2002 $22.71

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