Mars , Pennsylvania

The foundation provides parents with binders and resource materials to encourage organization of medical and educational information, and to further encourage better communication between all parties involved. The foundation also has a mobile & web library with books about many diseases and disabilities for parents to use or even purchase at a low cost. A collection of durable medical equipment is also available for parents who have exhausted every avenue to obtain insurance coverage. Finally the foundation offers emotional support for the parents and siblings as well family networking for parents to meet others in similar circumstances. [view full description]