Organic Acidemia Association is just one of 35,000+ groups listed by members at iGive. Here's a little more detail on them, as provided by members or the organization itself:
The Organic Acidemia Association is a voluntary not-for-profit self-help organization dedicated to providing information and support to families of children with inborn errors of metabolism. Established in the early 1980s, the Organic Acidemia Association provides information to affected families and health care professionals across the country and internationally.
The Association publishes the Organic Acidemia Association Newsletter, which includes updates, editorials, and letters from and for affected families three times a year for a suggested donation of $25.00 domestic to US, $35 internationally. They will provide new parents with back copies of the newsletter.
Total raised through iGive: $504.55
The most recent check issued to Organic Acidemia Association by iGive was sent on Sep 30, 2013 for $34.10.